on 24th july 2007 an angel in disguise was born, rebecca edwardson rebecca you entered this world so small and perfect,everybody who met you said you were a little china doll... you bought so much joy to our lives,& we are so so proud to be able to call you our own, we knew from an early age there was something wrong but all the doctors just kept on telling us we were wrong, but we kept taking you back over and over again,till they listened, finally you got to see a skin doctor who arranged a biopsy as you had skin lesions all over your body, he diagnosed you with a rare condition called pleva, but even then i knew he was wrong, and the biopsy never did confirm his diagnosis, so we kept on at doctors again,& again, till we finally got to see another doctor mr laycock, i thought he would be the same as the rest of them,but to my delight he listened & instead of turning us away he agreed that something was wrong. 2 days after seeing him you were admitted into hospial, for a ct scan, and 2 days after that you were transferred to the childrens hospital in manchester,because they found 2 white spots of calcium on your brain, you spent 2 weeks at manchester, undergoing loads of tests & procedures, but nothing came of them, each test they carried out came back normal so you got discharged, with an appointment to see mr laycock again but before that date arrived you became poorly, and you were admitted bk into hospital,& the following day back to the childrens hospital, where you had emergancy surgery on august 9th 2008, for which turned out to be peritinitus, you never did get the chance to come home again.. though you did recover from the operation you started becoming poorly again, and over the next 3 months you went through endless tests,but no matter how many tests or how many differnt doctors you saw they just couldn't tell us what was wrong with you, that was until september 22nd when you were transferred to great ormond street, where after 4 days of the same tests you had gone through so many times,they finally made the diagnosis of such a horrible and rare disease called degos disease, the doctors told us that it is so rare they know nothing about it and then thats when they broke our hearts, because they told us that there was no known effective treatment and they culdn't cure you, we went back to blackpool hospital on the 26th september 2008,doctors tried treatments but they just didn't work baby girl,2 weeks later you were took to brian house childrens hospice where you were giving the best t.l.c in the world you only managed a week before you closed youe eyes forever, all your family beside you, everybody came to say goodbye, you waited till it was just me & you daddy cuddled up together in bed before you spread your precious little angel wings and flew to heaven to be with all the other little angels, rebecca you are so,so special,& i hope that when you left this earth that you were not scared in anyway because my baby you did not go alone, you took apart of me with you, i miss you so much,we all ,iss you so,so much, too young to die,but too precious for this earth. xxxxxxxxxxxxxxxxxxx