Dear little Rebecca, your family loved you so dearly that they want your memory to be at the forefront of fundraising for research into this cruel disease. They are brave and so were you. Your short life was all too brief and through it we all hope to find out why, so that others do not have to go through what Kelly and Martin have suffered. Poor baby - your name and memory will live on and burn brightly. With grateful thanks to your parents and great sadness for the tragedy of your loss. Judith and Alan xxx